Tuesday, March 06, 2007

Week 3


3/1/07

The past week was incredibly difficult for us. Just when it seemed that Mia was doing so well she simply stopped eating for no apparent reason whatsoever. The doctors did numerous x-rays of her stomach and intestines and they showed no blockages. Truly baffling. Her lactic acid level rose back to 8. The pick line that administers her liquid vitamins and lipids intravenously broke off and need to be re-inserted. This requires a surgical procedure and they weren't able to get it after four attempts. They finally got in on the sixth try the following day. Stressful times indeed.


3/1/07

The only one not seeming bothered by all of this was of course Mia. Her perseverance in the face of all that is happening to her is truly inspiring. On Friday they tried to feed her again. 5 cc's of breast-milk this time, 30 less than they had been giving her before she stopped eating. She accepted it this time as mom and I released a collective if not tentative sigh of relief.


3/1/07

We came back to Port Jeff on Friday to stay close to the hospital in case we need to be there quickly. It felt good just being here, knowing we were close. We're planning to head back east tomorrow.


3/4/07

Yesterday was Mia's official due date, though mom and I are convinced even that may have been a week early. Regardless, our baby is again taking her food well. Today they increased her feeding to 15 cc's and she's taking it. She looks great. She's growing. She's about 5 lbs. 8 oz. now and getting more and more beautiful each day. The nurse took her off of the candular breathing tuber yesterday, and so far she's breathing really well.


3/4/07

Her acid level is back down to 5.5 today, and again we hold our breath and wait. We are a few weeks closer to getting the results back from genetic tests and getting some answers. The doctors are administering a combination of different nutrients to help with the high levels of lactic acid now, so we'll see what result that has in the coming days.


3/4/07

Thanks again to all for the well wishes and prayers. They mean the world to us.

4 Comments:

At 8:47 AM, Anonymous Anonymous said...

Dear Noah & Francesca,
It was so wonderful seeing Mia yesterday. She is beautiful and we know that she is going to be alright. We will come from time to time to see her and both of you and please call us if ever you need anything quickly. We are always there for you and love you both. Aunt Theresa & Uncle Mickey

 
At 11:52 AM, Blogger The Gaynors said...

Dearest Noah and Francesca,

We pray for Mia every day and there is not a day we don't think of you both and your beautiful little girl. She is such a lucky little one to have such amazing parents. I know she is in God's hands. I am putting her into two prayer circles. Please keep us posted. I check this every day.

Love and Miss you,
Christie, Joey and Luke

 
At 12:08 PM, Anonymous Anonymous said...

Great to see the new blog! Sorry that this past week was so heavy. It is amazing to see how content Mia is through all of this. Please take good care of each other, perhaps a milkshake chechi.....and give Mia a neck nuzzle from her Auntie Chechi on the west coast.

Love you to pieces,
Francesca, Sean, & Cooper xoxoxoxoxoxox

 
At 9:47 PM, Anonymous Anonymous said...

Most dear and loving Noah and Francesca....You are truly amazing and wonderful, Most Beautiful Francesca and Most Wonderful Son in the Universe,and now you have the Most Wonderful Granddaughter in the Universe. When I am with her and you both I feel such powerful love and the strength to continue on her journey coming from Mia is beyond powerful. I could sit and be in her prescence all day and night. I love you three so much. Thank you a million times over. MommaDonna/GramZ

 

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