Tough Week for a Tough Girl
Tuesday Mia had a spinal. The docs withdrew some fluid to test the lactic acid level in her spine. It was high, but consistent with the lactic level in her blood, which has also been going back up around the 6 and 7 range. They also started giving her a dose of thiamine daily as a form of treatment for the metabolic condition.
Wednesday they decided she needed the feeding tube put back in because she had been about 3 oz behind in her feeding for a couple of days. She now weight 7 lbs, 2 oz though! Hopefully she'll keep gaining.
Thursday she had a rest from any procedures. We spent some nice time with her and she seemed to be starting to focus in on mom and dad a little better. Her eyes are really starting to show a beautiful blue color as well. She also got a cute little pink bow in her hair.
Friday she has blood drawn in the morning for more testing, and then she had a blood transfusion at night, to replace all the blood that has been taken. She was very tired and hardly drank any formula from the bottle. Poor girl was wiped out. Hopefully with the fresh dose of blood she'll be a little revitalized.
posted by Francesca and Noah and Mia @ 3:12 PM
3 comments
3 Comments:
Tell Mia for us if they hurt her, we will punch them in the nose!!!!
If the weather pattern is the same I hope the warmth and sunshine is upon the 3 of you.
Francesca, I saw mommy and Elizabeth this morning, I get my update also from them on Saturdays. I gave them some foundations that were extremely helpful. Please take special note of Mum's parent to parent.. I don't know if this will help or not, but Mia , you and Noah are not alone in this journey.
Let Mia know that next Saturdays fundraiser, we are going to kick some .......!
By the way, Mia's ribbon is there one for a big girl like me!!
May the days ahead be restful and easy for you all! Kiss Bella Mia for me.
Love Norie
Dear Francesca, Noah & Mia,
It must of been tough for all three of you this week. But please know that you are in our prayers constantly. I wish I could come to Boston, but Uncle Mickey is still very weak from his stay in the hospital. We will be there as soon as we are able. We love you all. Hugs and kisses, Aunt Theresa & Uncle Mickey
I'm here, checking in and lovin' Mia!
She is one tough kid. All my Love and Prayers to you.
Love John
Post a Comment
<< Home