Wednesday, April 04, 2007

Boston Day 2


Mia is settled in now as are mom and dad for the most part. We met with the geneticists again today and a neurologist came by Mia's bedside to take a look at her. No news or results to report yet. They're all just going through her files from Stony Brook and deciding what tests they want to do of their own.




The night nurse last night said Mia wasn't taking all of her feeding which sometimes happens with her at night. She feeds much better during the day. The nurse put an NG tube into Mia's nose through which she can give Mia the rest of her feeding if she doesn't finish the bottle on her own. They just want to make sure she gets an adequate amount of calories.


For now, Mia rests and gets fed as the doctors here come up with their plan.



5 Comments:

At 8:03 AM, Anonymous Anonymous said...

OUR HEARTS ARE EXPLODING WITH LOVE AND CAREING FOR YOU. THANKS FOR THE BLOG. PEACE, DEAR ONES. LOVE, POPAA AND MS. M.

 
At 8:21 AM, Anonymous Anonymous said...

Our thoughts and love for you are with us every minute. We wish we could be there to support you. We love Mia and pray the doctors will come up with something that can help her. Love, Aunt Theresa & Uncle Mickey

 
At 9:25 AM, Blogger Unknown said...

All my love to you guy's.

What a beautiful child. She is so pretty! I hope to see you all soon.

All my Love

John

 
At 9:30 AM, Anonymous Anonymous said...

Wonderful pictures of an absolutely wonderful and beautiful family. Thank you for posting them-I miss you all so much! And I love you more than any words could say!
All my love, MomZ/GramZ xoxoox

 
At 11:46 PM, Anonymous Anonymous said...

Little Mia is sooooo sweet. In each picture I see so much of mom and dad. Mia is the luckiest little girl to have chosen two amazing people to be her parents. I miss you all dearly. My heart is filled with love and prayers for you.

Lots of Hugs and Kisses,

Esther

 

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