Labor Day

Thank you so much to our amazing community and network of friends, family, and beyond. It is incredible the reach that the internet allows, bringing people together and making it so easy to help and support one another. We are eternally grateful for the support we have been given, not just in the last few days but throughout all of Mia's life. Whenever we have needed it, you have all been there for us and it has made all the difference. 

Mia had an OK night. They are trying to ween her off of the ventilator, but her oxygen level began to desaturate and they had to raise it back up. She had a fever of 101 but beyond that no major episodes.

I spoke to the nurse this morning from home and both Mia and Mom are resting. They lowered her oxygen support to 60% and she seems to be tolerating that level so we'll see how that goes. Her temperature has come into a more normal range and she hasn't needed any Tylenol.

She's on quite a large dosage of morphine to keep her sedated, as well as other drugs to help with the pain. It breaks my heart to see my little girl in this state. I miss her bright eyes, her smile when I walk in the room, her yelling at me when she has a dirty diaper, and her incredible lust for life and wide-eyed curiosity of all things.

I know that that is all still there, somewhere below the haze of medications, wires, tubes, and monitors. I pray that we will see that little girl emerge from this again. If nothing else Mia is a fighter, and her lesson of strength and courage is beyond description. She inspires me to show up, to see the beauty of this life even when it seemingly knocks you down and drags your around. We have learned the most important lesson you can from this little being of light - that we are here to love unconditionally. We came from love, we are love at the very core of our being, and we are here to love and care for one another. That's it. Nothing else truly matters.

Thank you all for you support. We feel loved and want you to know that you are loved by all of us.

Enjoy the final days of summer and carry Mia in your heart and continue to pray for her recovery.

Love,

Noah, Francesca, and Mia